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End-of-Life Psychotherapy: Evidence-Based Approaches for Care

November 13, 2024

When it comes to end of life care, the focus is often on reducing physical suffering, as it should be. At the same time, there’s a profound opportunity for emotional and spiritual healing and growth.


This is where you come in. You have an important role in helping people at the end of life find a sense of peace and meaning, and you don’t have to work in hospice or palliative care to do it.


In my 20 years of working with people with life altering and terminal illness, I’ve witnessed remarkable moments of transformation – where my clients have found unexpected peace, deepened connections with loved ones, and discovered new dimensions of their life’s meaning in the context of psychotherapy. Of course, this doesn’t happen all the time, but when it does, it’s magical.

Which psychotherapy approach is best to use at the end of life?

 

This article reviews prominent psychotherapy modalities for end-of-life care, detailing their characteristics and unique advantages based on recent research findings, so you can decide for yourself.

Dignity Therapy (DT)

Overview: Developed by Chochinov et al., Dignity Therapy is a brief, individualized intervention designed to alleviate distress in terminally ill patients. This therapy provides a structured opportunity for patients to reflect on their lives, values, and what they wish to convey to loved ones. The treatment typically involves answering nine key questions that guide patients in expressing their thoughts and feelings about their lives.

 

Dignity Therapy follows a structured process that typically takes place at the patient’s bedside, with sessions lasting between 20 to 60 minutes. The intervention is guided by 9-10 core questions that help patients explore and articulate their thoughts, feelings, and life experiences. Each session is carefully recorded and subsequently transcribed, with professional editing to create a formal written narrative, often referred to as a “legacy document.” This document becomes a tangible representation of the patient’s life story and values that can be shared with loved ones.

 

What’s unique about Dignity Therapy is that it tends to benefit both the person dying and their family.

 

Benefits:

  • Quality of Life Improvement: Research indicates that DT significantly enhances self-reported quality of life and sense of dignity compared to standard palliative care.
  • Reduction in Psychological Distress: Studies show that DT effectively reduces depression and anxiety symptoms among terminally ill patients, with additional findings associated with increased hopefulness (Julião et al.Hall et al.).

Life Review Therapy (LRT)

Overview: Life Review Therapy involves guiding patients through a structured reflection on their life experiences. This process helps individuals find meaning and closure as they prepare for the end of life. Typically, it includes sessions where therapists assist patients in recalling significant life events.

 

Life Review Therapy  addresses distinct lifetime periods, moving through childhood, adolescence, and adulthood, while incorporating present-time reflection and culminating in a comprehensive life summary. This approach is specifically designed to help patients achieve ego-integrity and reduce death anxiety.

 

This therapy modality typically spans 4-8 weekly sessions, with each 60-minute session dedicated to exploring a specific life period. The therapy offers flexibility in delivery, as it can be conducted either at the patient’s bedside or in clinical settings. Sessions are sometimes recorded and transcribed, providing patients and their families with a tangible record of their life narrative. This structured yet flexible approach allows for a comprehensive exploration of life experiences while accommodating the physical limitations and needs of patients receiving end-of-life care.

 

Benefits:

  • Enhanced Emotional Well-Being: Research demonstrates that LRT can improve spiritual well-being and reduce feelings of alienation and existential distress (Xiao et al.).
  • Coping Mechanisms: LRT has been shown to alleviate negative emotions while promoting a sense of support and value in life (Ando et al.).

Meaning-Centered Psychotherapy (MCP)

Overview:

Meaning Centered Therapy (MCT), also known as Meaning-Centered Psychotherapy (MCP), is a structured psychotherapeutic intervention specifically designed to help patients with serious illnesses find or sustain meaning in their lives despite facing challenging circumstances. This therapy was developed by Dr. William Breitbart and colleagues at Memorial Sloan Kettering Cancer Center, drawing primary inspiration from Viktor Frankl’s logotherapy and existential principles.

 

The fundamental premise of MCT is that maintaining or enhancing a sense of meaning and purpose in life can serve as a buffer against psychological distress, particularly for those facing terminal illness. The therapy helps patients:

  • Create and experience meaning in their current circumstances
  • Reconnect with important sources of meaning from their past
  • Develop new ways of finding purpose despite limitations
  • Maintain a sense of identity and dignity through illness

 

Benefits:

  • Existential Distress Reduction: IMCP has been linked to significant improvements in quality of life, spiritual well-being, and reductions in anxiety and desire for hastened death compared to usual care (Breitbart et al.).
  • Enhanced Sense of Meaning: Participants report a greater sense of purpose following therapy sessions, indicating its effectiveness in addressing existential concerns.

 

Managing Cancer and Living Meaningfully (CALM)

Overview: CALM is a semi-structured intervention designed for patients with advanced cancer. It emphasizes symptom management and enhancing quality of life through meaningful conversations.

 

CALM consists of 3-8 individual sessions, each lasting 45-60 minutes, and can be conducted either in clinical settings or at the patient’s bedside, providing flexibility in delivery.

 

CALM addresses four core domains: symptom management and communication with healthcare providers, changes in self and relationships with close others, spiritual well-being and sense of meaning, and preparing for the future while sustaining hope and facing mortality.

 

CALM is designed to integrate seamlessly with routine medical care and involves caregivers when appropriate to enhance the therapeutic process and outcomes.

 

Benefits:

  • Depression Management: CALM has been associated with reduced severity of depressive symptoms over time compared to usual care (Rodin et al.).
  • Holistic Approach: This therapy addresses multiple domains including symptom management, relationships, and spiritual well-being, making it suitable for early palliative care interventions.

Narrative Therapy

Overview: Narrative Therapy encourages patients to narrate their life stories, fostering emotional expression and meaning-making. This approach allows individuals to explore their experiences in a supportive environment that uses language and words as tools to help patients open their minds to new interpretations of their experiences.

 

Narrative Therapy utilizes a “double listening” technique where therapists simultaneously attend to both the patient’s immediate story and its underlying themes. This approach helps patients separate problematic experiences from their personal identity while creating space for new narratives of hope, healing, and meaning.

 

Narrative Therapy uses a non-pathologizing approach, embracing the philosophy that “the person is not the problem; the problem is the problem.” The therapy operates within a collaborative framework between therapist and patient, where the therapist serves as an “influential collaborator,” intentionally directing conversations while maintaining a focus on patient-initiated goals and self-determination.

 

Benefits:

  • Improved Emotional Health: Studies indicate that narrative interventions can lead to reduced depression and increased feelings of peace among cancer patients (Wise et al.).
  • Survival Benefits: Some research suggests that narrative therapy may contribute to longer survival rates compared to control groups (Lloyd-Williams et al.).

Cognitive Behavioral Therapy (CBT)

Overview: CBT helps individuals address irrational thoughts and fears related to their illness through structured sessions. It focuses on modifying negative thought patterns that exacerbate anxiety.

 

CBT includes a range of techniques including cognitive restructuring, relaxation techniques, skills training, and visual imagery. Additional therapeutic tools include problem-solving strategies, reality testing, journaling, and mind-body therapies. CBT also incorporates exposure therapy and behavioral activation to address specific symptoms and challenges.

 

This multi-faceted approach allows clinicians to tailor the therapy to individual patient needs while maintaining the core focus on modifying thoughts and behaviors that contribute to psychological distress at the end of life.

 

Benefits:

  • Anxiety Reduction: CBT has consistently shown effectiveness in reducing anxiety levels among palliative care patients (Moorey et al.).
  • Mixed Results for Depression: While some studies indicate improvements in depressive symptoms, results are less consistent compared to other therapies like DT or IMCP (Greer et al.).

Conclusion

As you can see, there are many psychotherapy modalities to use at the end of life each helping to improve quality of life, reduce psychological distress, and enhance sense of meaning and dignity for patients in palliative care settings.

 

As healthcare professionals, it’s crucial to stay informed about these evidence-based interventions and their potential to positively impact the lives of those nearing the end of life.

 

To deepen your understanding and learn more about Dignity Therapy, Meaning Centered Psychotherapy, and Life Review therapy at end of life, I invite you to register for my upcoming “End of Life Ethics and Psychotherapy” course.

 

 

Register for our End of Life Ethics & Psychotherapy 6 Hour Ethics CE Course 

 

 

 

 

Resources:

Regina Koepp, PsyD, ABPP

Dr. Regina Koepp is a board certified clinical psychologist, clinical geropsychologist, and founder and CEO of the Center for Mental Health & Aging: the “go to” place for mental health and aging. Dr. Koepp is a sought after speaker on the topics of mental health and aging, caregiving, ageism, resilience, sexual health and aging, intimacy in the context of life altering Illness, and dementia and sexual expression. Dr. Koepp is on a mission to ensure mental health and belonging for older adults, because every person at every age is worthy of healing, transformation, and love. Learn more about Dr. Regina Koepp here.

References

  1. Chochinov HM et al., Effect of dignity therapy on distress and end-of-life experience in terminally ill patients Lancet Oncol.
  2. Julião M et al., Efficacy of dignity therapy on depression and anxiety in Portuguese terminally ill patients J Palliat Med.
  3. Hall S et al., A novel approach to enhancing hope in patients with advanced cancer BMJ Support Palliat Care.
  4. Xiao H et al., Effect of a life review program for Chinese patients with advanced cancer Cancer Nurs.
  5. Breitbart W et al., Individual meaning-centered psychotherapy for the treatment of psychological and existential distress Cancer.
  6. Rodin G et al., Managing cancer and living meaningfully (CALM): a randomized controlled trial J Clin Oncol.
  7. Wise M et al., Suffering in advanced cancer: a randomized control trial of a narrative intervention J Palliat Med.
  8. Moorey S et al., A cluster randomized controlled trial of cognitive behaviour therapy for common mental disorders in patients with advanced cancer Psychol Med.
  9. Greer JA et al., A pilot randomized controlled trial of brief cognitive-behavioral therapy for anxiety in patients with terminal cancer Oncologist.
  10. Lloyd-Williams M et al., Pilot randomised controlled trial of focused narrative intervention for moderate to severe depression in palliative care patients Palliat Med.